Meningioma Brain Tumor Journey | meningiomabtnetwork

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Lived Experience: A Personal Meningioma Brain Tumor Journey

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THEN....Pre-Op personal hair cut

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6:34a - Nuerosurgery Day!

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Plastic and Reconstruction Surgical Fellow Removing "Brain Drains"

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Allergic Reaction to the Titanium Skull Implant and Temporalis Muscle Atrophy

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6 weeks post-operative neurosurgery office visit

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Frontalis Sling implanted (Occuoplasty Surgery) to correct post-neurosurgical R-Eye Ptosis

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JHH Nuerosurgery Floor location

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Day 2 Post-Operative

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Nuerosurgery Team members at JHH consisted of Nuerosurgery, Nuero-Ophthamology and Facial and Head Plastic and Reconstruction

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"Brain Drain" tubing across forehead

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Surgery Team Nuero-Ophthalmologist and Ophthalmology Resident delivering news of post-surgical Right Eye-blindness

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Surgical "halo" wrapping removed/replaced

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Onset of cornea deterioration post Frontalis Sling implantation

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Meningioma BrainTumor was diagnoised by General Ophthamology Fellow at "The Wilmer" on July 9, 2014

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Required quarterly MRI scans with contrast

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NOW...today's physical features after 3 additonal plastic and reconstruction surgeries (post initial craninotomy and cranioplasty) in tandem with, numerous other non-surgical procedures and treatments.

Health-Related Quality of Life (HRQoL) Impacts

A meningioma and its treatment, typically surgery, and radiation therapy, can cause long-term complications, including; (Mayo Clinic, April 2020)

Difficulty concentrating
Memory loss
Debilitating headaches
Personality changes
Seizures
Weakness with tremors
Sensory changes
Occipital Neuralgia
Nasal passage granulomas (led to profuse nosebleeds)
Language difficulty
Vision loss (Cranial Nerve 3 damage - permanent loss in R-eye) ****blue text indicate EC's selected post-surgical sequelae****

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